Our Fragile X Story

March 15, 2008

A Big Day

Filed under: My Blog — Tags: , , — Janine @ 10:14 pm

Today was really busy for us. Firstly Greg and I went into the city with Greg’s mum to see a matinĂ©e of The Phantom of the Opera. It was spectacular. They lifted the chandelier above the audience and then guided it as it fell to the stage in the musical. The boat scenes underneath the theatre were fantastic. The cast were all fantastic and the costumes were colorful and opulent. Greg originally didn’t want to go, but did and won’t say how much he enjoyed it.. but I know he did. The singing was great and it was well worth the money to go and see it. Becaue it was a matinĂ©e, the major stars of the cast did not take their roles, but we did not miss out in any shape or form. The understudies that played the lead roles were all superb and we had the privilege of listening to some up and coming and also established names in the musical industry.

We got home with only 45 minutes to spare and we were out the door to the Queensland Reds Vs. The Bulls Rugby Union Football game. This time the boys came with us. Greg already had a QR scarf, so we bought another one for Geoffrey. He loves any footy, but with his autism quickly becomes over stimulated and tonight he didn’t fail me. Geoffrey is extremely good, until we have to exit the stadium to which he becomes very anxious and resistive. The reason is because as we enter and exit the stadium, it looks as though we are high up as we look down towards the sports ground. I usually manage it with a reassurance, then a limit, and then a forcible tug to get him moving behind me – telling him not to be so silly, he’s 20 and making a scene for himself. Sometimes it can be difficult when he digs his heels in, and tonight he was pretty stubborn, so I needed to have a good hand on him. When we finally get to the top, which is only about six rows behind us anyway, I aks him how silly does he think he was. He usually says that it was a bit silly, until the next time that we do this. We want to take the boys to a Brisbane Bronco’s game and then if we can, get tickets to a state of Origin game that is played up here in Brisbane. Both boys will love it, I just need to remember how autistic Geoffrey can become in his over stimulation!!!

Oh the joys of Fragile X. :-)

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