Just thinking

I was reading a friends blog which reminded me that I have not been on this blog for a while. I need to remember to keep it up to date so that people surfing the net, looking for blogs about Fragile X can read something current and relevant. I also want to bookmark my friends who also blog about Fragile X and what it means for them, their children and their families.

Randi has asked me to put my experiences into a book. The problem is, I don’t know where to start. I think publishing a blog is easier because I don’t have to concentrate on a chronological order and I can write what ever comes to mind. As you read my blog you can read about the diagnosis, Early Intervention, School and now Post school options. If anyone has the gift of putting information such as this into a book, please feel welcome to offer your assistance. I think it would be fantastic to have a compilation of experiences. I am thinking of people such as Mel, Holly, me of course, Amanda, Maggie, Sue. You all know who you are. We all have a wealth of insights and experiences that with photos, would make a valuable book for new parents or new families who are just learning about Fragile X.

I have gone back to Nursing.  It has been eighteen months now since commencing sick leave. I didn’t think that I would enjoy my return to Nursing but I have been proven wrong. There must still be a bit of Nurse in me. I am only working three days a week now, so that may make some difference. I am also studying for my Graduate Certificate in Disability Studies. As we walk the walk as well as talk the talk, professionally as well as personally,  I wanted some structure to my knowledge and to open some doors towards the disability sector. I do not know what that will look like yet. I don’t know if I want to leave Child and Youth Mental Health Nursing or if I want to meld my knowledge into something new. I will have to wait and see what happens with that.

Greg and I have some ideas in our heads regarding which way our skills can take us. Greg being a specialized teacher with a Master’s in Autistic Spectrum Disorder has much to offer the Special Education setting as well as mainstream. Again, we need to sit back and see what happens. Maybe at the end of the year we can review where we are and make decisions regarding our future.

um – we are just not sure.

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