Katherine does not carry the Fragile X gene. However because she was tested in 1991, the test at that time only captured carriers with higher numbers of repeat sequences. She has since been re-tested with both tests and both come back saying that she is not a carrier. I wonder how it has been like for her living in a family with a disabled brother. I have tried hard to make sure that she got attention and loves outside of caring for Fragile X and I think that I have done ok. Whilst she is a young 21, with all the moments those hormones can bring, overall I have a gifted, caring and well balanced daughter. I am really not sure. I will have to get her to write something here about her experiences.


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